
Except lots of stories, oh wait, oh yea, forgot, I have lots of stories….
It’s been a very trying few weeks with Homer and that’s because it’s changing and it’s getting more tangled and more of a true mess…
Here is where I have to decide, take the toys away, or be very vigil and know, he is one accident away from a bleed out…
With Don, dad, he had sundowner’s first and then developed dementia and by the time 2003 was here, you knew… and I knew and we moved from Washington to Mena to be there and that’s been a whole different story…
All that work on the 5th wheel and I burned up the motor on one fan, a cheap one, so the next one, I told Homer, don’t do and be quiet and hand me tools…
It went pretty good and everything is installed and operational… Hot water on gas or electric…
The new hot water heater is identical to the one we took out and Homer says we need a new cover and I didn’t think much of it, because I didn’t pay attentition to one item that would have said, use old door…
So I order new door, it got here today and the explosion is over…
The 5th wheel has a bumper guard all the way around it, to protect the paint job and it intersects with the heater…
I take new door out and parts and look and think, not gonna work, go get old door and look why… The bumper guard…
Want to know how scared I am right now????????????????? Multiple that a trillion times…
Lewy Body is unlike regular dementia…
He hears what isn’t said or says something, but it comes out in tounges or he sees something that didn’t happen…
Hallucinations are the hallmark of Lewy Body, now you understand why Robin Williams couldn’t go there…
He was too creative to live the constant noise that this disease causes… I know, I am watching Homer in real time…
I told Homer, it’s moving and changing faster, but then I remind him… You have had symptoms for decades and we made lifestyle changes that gave you more time and I am worried that time is running out faster than either of us want to see…
One minute he is all there and gone as if a magic carpet took him on a ride for one and he’s in a world of confusinon and distress…
What is coming for Homer is not what anyone should live, Lewy Body is very much like Sundowner’s except it is 24/7…
I remember…
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And the old heater cover goes on tonight…



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