Not the words you want to hear, but they have been trying to narrow it down and to be honest, they get irritated when you tell them Neurologist get it wrong and I gotta remember… Hold those lips closed sometimes and let them run theirs… But how many times do I got to prove them wrong???

Homer’s issues with involuntary movement isn’t new… So we know it’s not medication caused… No this was going on when we got married and because he was a alcoholic, I figured it was the booze… He quit in 2001… and it’s gotten worse, the shaking and movement… So, not the booze…

The PA was patient with me, she could tell I was anxious, worried he had parkinson’s on top of everything else and she tested him and then proceeded to explain what she thought was going on, and checking his records as she went… She was thorough and I really like this clinic…

She explained, “essential movent and action movement”, and once we were done unloading the truck, I sat down and read about what she told me and then I looked up Lewy Body and my heart sank and I had Homer read it and we agreed, he fits those symptoms almost to a “T”….

This is what Bruce Willis has and what Robin Williams had and I get why Robin did what he did… This is a acid trip and when you are that creative, that would be a nonstop hell for Williams…

The neurologist brought this up at our first 2 meetings and vascular dementia, etc… Taking it all into consideration with his Lydon factor 5 blood clot disorder, like the neurologist said from the beginning…

Mixed dementia…

Not the direction I want to have to stay in, but I don’t get a say, Homer’s body is doing all this…

So, because of the involuntary movement, a request was put in for Botox injections and the neurologist will do the shots and if approved by medicare and ChampVa shits on me like they did for the PET scan at $10,000… I told them if you charge me what champVA would pay, I can afford it… I can’t do full price if it’s expensive… So, it’s wait for a phone call…

The botox will be injected into his arm muscles along the top of the Ulna I think… New to me, so trying to remember anatomy… If it works… Homer will be able to control his eating and holding a screw driver or hammer, well hammer, don’t stand near him… Yea, it gets that crazy…

If Homer has this Lewy Body and what I saw after he quit drinking… How much time does he have left… That will depend upon how fast it progress’s and since we got the diagnosis last summer, I guess we are in year 1 for the survival time table… Even though I know he has exhibited the symptoms for at least 20 years…

Next question are we the lucky ones and he’s beating the odds because we made all the right lifestyle choices for the 25 years??? I am hoping, I did right…

Now the question, what can I do to delay it and after today’s outing… He is alive, only because jail isn’t my thing… But micromanaging while I am driving will get you a royal chewing…

No tickets and the only accident was caused by the other driver in 54 years… I started driving at 18…

So not the news I wanted to hear… She listened and heard my frustration and gave us hope and insight… Not much more they can do, because the way they talk about the drugs used for some of this stuff, he’s already on because of his heart or RA…

Very frustrating day for me, but even more so for Homer, because he got his ass chewed for being a side seat driver and hitting the floor like the break or grabing the handle… The dude is gonna end up in the back seat…. Kid ya not… It’s distracting when you are driving!!!

After ranting this morning about the corruption I am dealing with, with the family, knowing I can go after the original lawyer for what he did and I probably will file papers on Patrick… Not too sure if Billy counts, that would be up to the system in that state…

But, I recommend the family tell the court they are dropping their petition, because at this point and time… All I want is to get them out of my life, and all they have done is piss me off as bad as our government did and you know what…

I never lost a case against those yahoo college educated freaks… So Billy you better have something good, because right now, I want your clients in jail!!!

Have a wonderful day, enough ranting… Our hot water heater is delayed, so gotta raise hell and order and more expensive one… oh yea…

I remember…

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